Meet Sophia

Sophis johnson 8x10 077Meet our Amazing kid, Sophia! Her family is amazing and so full of support, dedication and understanding of the importance of making memories and awareness of childhood cancer. Read what Sophia’s mother, Julie has to say:

“Sophia is our beautiful 13 year old daughter who was diagnosed with medulloblastoma (a brain tumor) in December of 2012. She was just 5 when diagnosed , she underwent surgery to remove the tumor, 28 days of full brain and spine radiation, and 9 rounds of chemo that took a little over a year to complete. After 6 years of being in remission, and preserving to gain back her strength, Sophia’s cancer came back in August 2013. Currently, she receives chemotherapy 6 days out of the month that requires at least two round trips out of state.

Almost anyone who knows Sophia says “her smile is contagious”. Although there have been many things she can’t do… Sophia focuses on what she can and complains very little. Sophia’s favorite color has always been yellow… bright and cheery, a very good description of who she is. One of her favorite activities is baking… she loves to be in the kitchen and has a dream to open a bakery one day.
As her parents, we would do anything to take this all away, but we cant. We work hard to find the best care for her, and provide it… no matter the cost. For kids like Sophia, there are no more protocols to follow… there are just clinical trials to keep the cancer away and hope for another remission.

As one can only imagine this takes a lot of effort in every way imaginable. If it weren’t for the genorosity of the Amazing Gracie Foundation that much needed break from all these treatments and the ability to make some awesome family memories may have not been possible. Our families Montra has been “begin with the end in mind” but after Sophia’s 3rd recurrence.. we just began. With the help of the foundation we were able to take two small getaways, and a trip to Disney. Not to mention an awesome photos shoot and a pampering day with her friends. Seeing Sophia smile and thoroughly enjoy herself with her sister was amazing. My husband and I wanted to “freeze” time. If we can’t get a cure… we’ve at least had dream. A dream to see Sophia as a princess, a dream to see she and her sister laugh over the little things, dream dinners with characters, swimming, sliding, indoor waterpark, and just being “a normal” family while enduring a storm. Priceless!

If you want to make a difference in a family whose child has been diagnosed with cancer… give to this foundation. They are a group of people who really cares and understands the difficulties of this journey. If you don’t feel compelled to give here, then to research to find a cure for kids like Sophia and soooo many others. Research like Connecticut Brain Tumor Alliance, or St. Baldricks , or Whole in the Wall Gang. If everyone gave a little it could make a huge difference.
Sincerely and with gratitude,
The Johnson’s”

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